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We have only touched upon some pieces of Rett Syndrome this month.  As Rett Syndrome Awareness Month comes to a close, we urge you to continue to learn about this.  We want to share some resources with you.  These organizations are valuable resources, and they do a lot of fundraising for research to find a cure.  These organizations go beyond fundraising!  These organizations offer so many resources and family support.

RettSyndrome.org

Rett Syndrome Research Trust

GirlPower2Cure

There have been many advances and there are several clinical trials taking place, however, there is still much work to do!

Rett University is a valuable resource, offering several webinars around different aspects of Rett Syndrome.  There are also many free resources for families and caregivers.

Rett University

We hope you find these resources useful.  Thank you for sharing in Rett Syndrome Awareness month with us!


Tanya Keller

Meet Tanya, our pediatric speech language pathologist and AAC specialist. Tanya moved from Boston to San Diego. She earned her Master's degree from Emerson College in Boston, in Communication Disorders in 2004 and a second master's degree in Assistive Technology from Simmons College in Boston, in 2012. Tanya has provided speech and language services for children who have complex communication needs, using low and/or high tech augmentative and alternative communication (AAC) with varying diagnoses. Tanya has been mentored by experts in Rett Syndrome and complex communication needs. She is PODD trained and attends the yearly assistive technology conferences. She has experience using a variety of AAC devices and working with alternative access, including eye gaze and switch use. In her free time, Tanya enjoys exploring San Diego, going to the beach and spending time with her dog.

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